Today, Queen Letizia of Spain presided over the commemoration act of “World Day of Rare Diseases” that is being celebrated under the slogan “Uniting social and health care” in 2019 at the Duke of Pastrana Complex in Madrid.
Upon arrival Queen was received by the the Minister of Health, Consumption and Social Welfare, the president of the Spanish Federation of Rare Diseases and the third vice president of the general council of ONCE.
The Spanish Federation of Rare Diseases, which is made up of more than 200 associations, works in an integral way with families with rare diseases through projects and services aimed at improving their quality of life in the short, medium and long term, as well as promote a society in which people with a rare disease have the same opportunities in life as the rest, regardless of the rarity of their disease. It is known as “rare diseases” to the set of pathologies whose prevalence is less than five cases per 10,000 people.
The Queen collaborates actively with the Spanish Federation of Rare Diseases (FEDER) by lending its support to those affected through public and private meetings and attending activities that promote knowledge of the disease and highlight the fundamental importance of the investigation, among others.
The 12th edition of the Rare Disease Day will focus on closing gaps in the coordination between medical, social and support services to address the challenges faced by people living with a rare disease and their families all over the world.
The Rare Disease Day 2019 is an opportunity to be part of a global call to policy makers, health professionals and care services to better coordinate all aspects of care for people living with a rare disease.The slogan “Uniting health and social care” will guide patient organizations and all Rare Disease Day participants around the world in their promotional activities for the Rare Disease Day 2019. Letizia listening to the panel discussion.
Queen Letizia addressed the gathering, “The three million people who suffer from an uncommon disease. They deserve to improve: diagnosis times, access to treatments, coverage of benefits”.
Before leaving Letizia met with the audience.
A cute moment between a kid who is suffering from a rare disease and Queen.
For the day, once again keeping her look minimal and professionally chic, Queen Letizia chose her trusty labels Hugo Boss and Carolina Herrera. She was wearing Boss Decehsta Glen Check Stretch Cut Cap Sleeve Sheath Dress.
The $495 Dress is described as, “This tailored work staple in a classic glen plaid is modernized by a paneled construction that deftly twists the pattern into fresh and flattering new angles” on Nordstrom where it is on 40%off and available for $296.80.
The Iconic glen checks lend a timelessly elegant finish to this faux wrap sheath dress. The sheath silhouette dress features surplice asymmetric V-neck, cap sleeves, concealed back zip, seamed waist and is fully lined. Dress is currently retailing on Saks Fifth Avenue, Nordstrom and Bloomingdales.
A closer look at the pattern.
Letizia topped the dress with her black thin leather belt that we have seen in the past too.
Queen wore her Carolina Herrera black suede sandals that were premiered on Princess of Asturias Awards Concert in 2018.
and carried Carolina Herrera Astrud clutch.
PS: Post is in progress will be updated soon.