Queen Letizia of Spain presided over the official act for the World Day of Rare Diseases, in the BBVA City in Madrid. The event was held the framework of the FEDER campaign “Grow with you, our hope”, coinciding with its 20th anniversary.
The Spanish Federation of Rare Diseases, which is made up of more than 200 associations, works comprehensively with families suffering from rare diseases through projects and services aimed at improving their quality of life in the short, medium and long term, as well as promote a society in which people suffering from a rare disease have the same opportunities in life as the rest, regardless of the rarity of their disease.
It is known as “rare diseases” to the set of pathologies whose prevalence is less than five cases per 10,000 people. Although the most correct thing would be to call them “rare diseases”, the name “rare” is the most widespread and the one that is commonly used. It is estimated that in Spain there are more than three million affected, especially young people and children.
This event was a meeting point between entities of the associative movement, solidarity ambassadors and political authorities, to place rare diseases as a priority on the agenda of political agents. World Rare Disease Day 2020 was celebrated on February 29, with the aim of raising awareness about rare diseases and the impact they have on people’s lives.
The main objective of the campaign is to raise awareness among the general public and politicians about rare diseases and their impact on patients’ lives. Raise awareness about what it means to be weird. There are more than 300 million people worldwide who live with a rare disease. Together across borders and through more than 6000 rare diseases, work is being done to obtain more adequate access to diagnosis, treatment, care and social opportunities. The key message for World Rare Disease Day 2020 was that “Rare are many around the world. Rare is strong every day. Rare is pride everywhere.” During the event, Letizia presented the 2020 awards too before addressing the gathering.
Now to What Letizia Wore -Letizia was looking chic in a pink-toned outfit. Upon arrival, she was wearing her black long Carolina Herrera coat.
Queen wore her pink Adolfo Dominguez Long Sleeve Satin Blouse that she debuted in January 2017.
The new element of her look was the Reiss Marlie ombre print skirt.
The $325 skirt that is currently on sale for $180 is described as,” The Marlie knife-pleat mid-length skirt is designed with graphic ombre print in black and neutral. It falls to a chic midi length, making it versatile wear.”
Queen Letizia paired the outfit with her Steve Madden Dalia Nude suede pumps.
Letizia debut a new pair of earrings today. She wore Coolook Candy Hera Earrings that were made of Big Candy Earrings in gold that is available for€149. Label’s €247 Hera mix stone earrings in gold are suspended from the candy studs.
and Karen Hallam ring finished the look.
