Queen Letizia of Spain received two audiences at the Royal Palace of Zarzuela. In the morning she received an audience with the Board of Directors of the Ibero-American Alliance for Rare or Infrequent Diseases (ALIBER). Letizia met with the new Board of Directors of the Ibero-American Alliance for Rare or Infrequent Diseases (ALIBER) to learn about the challenges of the group after the publication of the first Study on Social and Health Needs of the group in Latin America (ENSERio LATAM Study).
Among the main conclusions of the study is that 65% of the group has suffered a delay in diagnosis, an average of more than 8 years, generating a great social and health impact on both the patient and their family, as well as a worsening of the disease or inadequate treatment.
As the main priority, the study highlights the importance of establishing a global definition of “Rare Disease” that allows a more equal provision of socio-health services as well as the possibility of carrying out international comparative studies.
Then Queen Letizia met with the representation of the participants in the “I Congress on Trafficking in Human Beings, how to make a hidden reality visible” organized by the Asociación Nuevo Hogar Betania. The congress was held on May 26 at the Faculty of Labor Sciences in Seville, aimed at social, health, and justice professionals, State Security Forces, and Bodies and students. The event was attended by survivors who, after a recovery process, are able to give their testimony as an example of overcoming.
Trafficking in human beings and gender violence are the maximum expression of inequality between men and women and represent a serious violation of Human Rights such as freedom, security, equality, and dignity, among many others. These two forms of violence continue to affect millions of women and girls each year who suffer physical, psychological, and sexual abuse. The Asociación Nuevo Hogar Betania works to give visibility to this form of slavery and the very serious consequences it produces on the victims. To do this, they promoted this 1st Congress, together with other entities and the different organizations and institutions that intervene in the process of detection, rescue, protection, recovery, and integration into a normalized life for all victims.
In this fight, the awareness of civil society is of vital importance, as well as the coordination and mutual learning of all the organizations who are already intervening in some way in these processes. During the conference that was held on May 26, 2022, the situation of trafficking in Spain was presented, and the progress achieved was also made known thanks to the work of social entities and the key challenges in the fight against human trafficking. human beings in the European Union. It was also an opportunity to listen live to the survivors of this social scourge who, after a recovery process, are able to give their testimony as an example of overcoming.
For the occasion, Queen Letizia showed her support via her sartorial choice. She was wearing a Blouse made by the Apramp association, which combats women trafficking.
She was wearing her white Magrit Dalila pumps.
The Queen was wearing a pair of gold hoops
and her Karen Hallam ring.
