Queen Letizia of Spain presided over the event marking the “World Day of Rare Diseases” at the Palace of Congresses and Exhibitions of Galicia in Santiago de Compostela. This year’s event was organized by the Spanish Federation for Rare Diseases, under the slogan “Make time go our way”, which exemplifies the pilgrimage against time that the families until they managed to put a name to their disease. Queen Letizia is the Honorary President of FEDER which was established in 1999.
Since 2008, World Rare Disease Day is celebrated every year with the aim of raising awareness about these diseases, which affect a large number of people around the world. The day has become a global event that involves patients, family members, caregivers, health professionals, researchers and organizations dedicated to the care of rare diseases.
This year’s event in Santiago began with a dance show and then a presentation “The challenges for access to a diagnosis” discussed the challenges faced by patients and their families. Estimated 3 Million people in Spain suffer from rare diseases. This year’s campaign is part of a global campaign to promote an international mobilization to stop the difficulties of equal access to diagnosis and treatment.
Then Queen Letizia presented the FEDER 2023 Awards to the projects and initiatives that promote and provide access to diagnosis for the thousands of people who live with rare diseases or are seeking a diagnosis.
Speaking at the event, Queen Letizia said, “when it cannot be cured, it can be taken care of. Human treatment, resources, emotional support, clear and understandable information, listening, complicity in the process, and comprehensive care. We must continue taking steps, we must continue together on this path. And you always have me by your side“.
Before leaving, Queen Letizia met with the FEDER members, award winners and guests.
Heading towards Queen Letizia Style – Letizia chose a simple yet vibrant look for the day.
Upon arrival in Santiago, Letizia was wearing a white wool long coat.
Queen Letizia was wearing a Roberto Verino Taffeta Shirtdress. Made of fuchsia taffeta, €395 dress features long sleeves with loops to roll them up. Shirt collar, visible button fastening in the centre front and tie belt in the same fabric.
The Queen teamed up the look with her Carolina Herrea croc-effect fuchsia slingback pumps.
Letizia temed up the outfit with her Gold Roses Jardin de Aire Rose Gold Diamonds and Emeralds Earrings
and her Coreterno ring.