Spanish Queen Letizia presided over the working meeting of the Spanish Federation of Rare Diseases (FEDER) at the ERDF headquarters in Madrid to learn about its roadmap to 2030 and its strategy.
The Spanish Federation of Rare Diseases (FEDER) was created in 1999 with the aim of being the spokesperson for the more than three million people who live with one of these pathologies in the country. Throughout these more than 20 years, the entities and associations that have joined forces the foundation represent more than 1,300 pathologies and almost 97,000 people.
Upon her arrival at the headquarters of the Federation, The Queen was received by the president of FEDER, Juan Carrión and before the meeting began, she received greetings from the director of the Federation and its Foundation and other members of the foundation.
The agenda of the meeting was to discuss the new Strategic Plan with which the Spanish Federation for Rare Diseases (FEDER) seeks to work “from the local to the global” to take on the challenges of this group in the future. The meeting served to convey to Letizia how, from the associative network and the projects of the organization itself, it contributes in a transversal way to the achievement of the Sustainable Development Goals.
The annual meeting has been held every month since 2013 when the UN passed a resolution on Rare Diseases that urges member countries to develop specific policies on the cause. Queen Letizia is the honorary President of the FEDER and has been very active with the workings of the foundation. During the meeting, Letizia also found out how Spain’s involvement in these challenges will translate into progress at the state and regional levels. ERDF will focus 2022 on guaranteeing that the Ministry of Health fulfills its commitment to evaluate and update the Strategy for Rare Diseases of the National Health System, as well as developing new plans and transversal policies on the matter in the communities.
For the day, Queen Letizia was wearing Hugo Boss Notch Lapels Double-Breasted Coat. Thanks to Nuria for the id.
The sold-out wool coat was described as, “Offering a trend-driven silhouette with a long length and a double-breasted front, this straight-fit design features notch lapels and is partially lined for comfort”
Underneath the wool coat, Letizia was wearing Hugo Boss Kocani Blazer
and Hugo Boss Ariysa Pinstripe Cropped Trousers.
Letizia was wearing her Magrit Liza pumps and carried Carolina Herrera Baret Clutch.
The Queen teamed up her look with gold hoops
and her Karen Hallam ring.